Where to Go When You Have to GO at Walt Disney World

When you suffer from an inflammatory bowel disease (IBD) as I have for most of my life (Crohn’s) you become very familiar with restroom facilities where ever you happen to be. As a relatively frequent visitor to Walt Disney World (WDW) over the years – since 1975 – I think that I can safely say I have seen a majority of the restrooms in each park at WDW. So, with the understanding that I speak strictly from a male point of view and as a single childless person I don’t pay attention to things like baby changing stations, here are my observations:

The Good News:
In general, as with so many things, WDW on the whole does a great job with their restrooms. They are cleaned frequently and you rarely encounter an “out of order” sign on any given stall. I cannot even recall an single incident or time where I visited a restroom at any of the parks and found that the stall I chose was out of toilet paper or, worse, clogged up by the previous occupant. Given the number of people who must use the facilities at any of the parks on even a slow day this is an impressive feat.

Also, in all the parks the restrooms are spaced out fairly regularly and are generally well marked so that they are easy to find. Given how sudden the urge may strike for those of us with IBD this is a blessing. Even during my most recent visit to EPCOT (February 2020) with construction closing off the usual walkways between Future World and the World Showcase I still found the restrooms to be located in good proximity to each other.

The Bad News:
Yes, you will find the occasional wet seat because some nervous dude was afraid to lift the seat before he tinkled (trust me guys, in case your wife hasn’t clued you in yet your aim isn’t as good as you think). This is by no means the fault of the cast at WDW, however, but it’s still disappointing. Can you guys who don’t want to lift the seat maybe try doing it with your foot? Oh, you wear flip-flops exclusively…sigh. You know you can wash your hands immediately afterwards, right? You DO wash your hands immediately afterwards, right?

Moving on…

Part of the Tangled restroom theming – if you saw the movie you know.

The Best of the Best
In my humble opinion the best restroom at WDW is the one in the Magic Kingdom’s Tangled Rest Stop. This is one of the newer facilities and it is large and roomy. There always seems to be a seat open when you need on even when the area is packed full of guests – as it usually is. This location is also nicely themed in keeping with the character of the area. A close second are the restrooms over in Galaxy’s Edge (near the Market Merchants). These restrooms are more industrial and utilitarian in appearance but again fit nicely into the theme.

The Best Placed Restroom
The restroom which is best placed is without a doubt the one about halfway through the queue line for Avatar Flight of Passage over at the Animal Kingdom. Given that even with a Fast Pass you may be standing in line for over an hour having this restroom was a true blessing. It’s a one seater though so you may have to wait if someone else is using it and, of course, the line will keep moving while you are doing your business so to avoid angering your fellow guests your entire party will have to wait for you there (fortunately, there was only one person with me last time I visited).

If I were king of the Magic Kingdom I’d be looking into how a restroom can be added into any line that stretches more than an hour in length (I’m talking to you Peter Pan).

The restroom is where now?

The Worst Restroom
This one is a bit of a surprise, but in my opinion the worst restrooms are over at the Magic Kingdom’s Tomorrowland between Auntie Gravity’s Galactic Goodies and Star Traders. Usually crowded and, though it might be my imagination, an unusually narrow passage way between the stalls and the wall. I’ve had to use it several times and for some reason it always seems to be a less than stellar experience – but in port in a storm as they say.

So there you have it. My opinion of the restroom situation at Walt Disney World. Like I said, overall pretty good. The fact that I don’t recall most of my visits to restrooms is a very good thing and just how it should be.

These are my thoughts and I’d love to hear yours!


Fitness Quest: 2020 A Year in Review

Well, I’ve been away from this blog for far too long! I’m sure that both my fans have been wondering what I’ve been up to fitness-wise so here it is: not much.

I don’t have to tell anyone that 2020 was, at best, a weird year. For me the biggest adjustment was working mostly from home and I acknowledge that I’m fortunate to be able to do this. The other big adjustment was not being able to travel as I normally would. So you might think with all of this unscheduled free time being given to me because my normal after work activities being halted, especially community theatre as the biggest “time hog,” that my focus on fitness would have skyrocketed and that by now I’m a mass of lean, mean, old man muscle. Well, not so much.

The toys.

Gyms closing didn’t help but that wasn’t the real issue. My biggest issue was adjusting to cooking at home. Which, if done right, is the way we should all go. However, I found that when confronted with a full refrigerator and pantry all day I tended to “graze” all day in addition to my regular meals. So like so many others my weight creeped up during the past nine-months but went way up starting about July according to my fitbit. I think the combination of eating all day and the loss of my regular cardio classes just finally caught up with me despite my regular walks. I also suffered a mysterious shoulder injury in September so my lifting was impacted. My bench press in particular. I did manage to continue weight workouts with the personal trainer in his home gym and with my brother-in-law in his. The spring, summer, and early fall saw me taking regular walks with my sister mostly every night. But the extra fat has refused to budge.

Photo by Rachel Claire on Pexels.com

So, in an effort to make a change I’ve given into the marketing and am trying Noom. I have plenty of suggestions on how to improve the product which might be worthy of another blog entry after a few more weeks, but so far so good. It’s helped to remind me of things I already knew and I’m down about four (4) pounds so far (almost 2 kg).

Things I did discover while cooking for myself this past year – I do like a fairly wide variety of foods. The heart healthy Mediterranean diet is interesting and not that hard to make. Vegetables and fruits are filling and also tasty. Don’t get me wrong, hamburgers and fries are still a big portion of my diet (too big) but I do see the way and the light. Plus one of my new past-times is looking through cookbooks and thinking to myself “I can make that.”

The biggest news – I got through 2020 without a major health crisis! No ER visits, no surgeries. The Stelara I take to control my Crohn’s seems to be working and my gastroenterologist says that there is no sign of the disease. This means that, for the moment at least, I should be able to become as fit as my middle-aged body will let me. Yes, I still have a damaged heart from a previous heart attack. Yes, my kidneys are still below optimal function from my bout with Norovirus last year (did you forget that their are still other viruses out there waiting to get you? Keep washing your hands and covering your faces folks – thanks) but overall I’m stable and healthy. Minus a few occasional aches and pains. Also, I find it ironic that I can lift a small car off my chest if necessary (a very small car) but have trouble getting up off the floor. It’d be funny if it weren’t so true.

So, I’m done with 2020 and ready to move on to 2021. I can’t control what the world may have in store for me, but I can sure as heck control how I react to it and my own small corner of it.

Onward!

Crohn’s Update: Surgery and Post-Op Condition

Warning: as usual with my posts regarding my struggles with Crohn’s this post contains frank discussion of basic bodily functions not usually discussed in polite company. If talk of peeing and pooping make you squeamish, you may want to just move along.

Giving the “thumbs up” after surgery!

Those of you have read my previous post know that I had gone into the hospital to have what the medical staff referred to as an “ileostomy takedown” or in other words, my internal plumbing was reconnected and all organs that belonged inside my body (the stoma, which was a portion of small intestine pushed out through my abdomen for the removal of waste via an appliance aka “the bag”) were put back inside. This is an operation I had been looking forward to. Even though the creation of the stoma quite literally saved my life, it was an inconvenience to deal with – some of the issues I have described in earlier blog entries.

So, how did it go? Pretty well actually. According to the surgeon the surgery could not have gone better. Unfortunately, this does not mean that there were no issues. The biggest one, from my perspective, was that the epidural given to me to control pain also caused an issue where I could not release my bladder. You see, the epidural provided strong drugs to my mid-section which essentially turned off nerve receptors. The good news is that thanks to this treatment I was up and around pretty quickly. The bad news, I couldn’t urinate. This led to not one, not two, but several different catheters being inserted into my uretha – an uncomfortable procedure at best and in my case painful as apparently one of the times my uretha was “nicked.” As bad as not being able to go was, the sight of blood coming out of where blood should never come out was a bit unnerving to say the least. Plus this caused some pain in my you know what, which prevented me from trying to go. At one time the urine back up was so bad that after one catheter I released 1.2 liters of urine. For comparison, the average male bladder maxes out as about 400 – 600 milliliters. My bladder was pushed to its limit. This extended my hospital visit by a couple days as they wanted to be sure that my urinary function was normal before sending me home.

Well, that and the unexpected vomiting.

The third day post-op my gut seemed to be waking back up. I didn’t actually pass gas or stool yet, but my bowel sounds were active. In fact, one nurse said my gut sounded “hyperactive.” Which usual meant that things were starting to move through my system again and my long unused colon was waking up (so to speak). Wrong. Just as I was about to try to eat some lunch my guts went into full revolt. And very much like the girl in the Exorcist I began spewing everywhere! Since I hadn’t eaten much what came out was a build up of gastric juices and other liquids. The good news is that I learned I could still move quickly despite any lingering internal pain, the bad news is that we discovered how much liquid I could hold in. Turns out, quite a lot.

After these two setbacks, things started to improve quickly. My bowels began moving on day 4 PO (post-op), pretty much pure liquid but I was passing stool and gas. My bladder kicked back in later that same day thanks to some Flowmax and the discontinuation of the epidural. So by day 6 PO I was able to come home.

Now, one day shy of three weeks post-op, my stool is still pretty liquid with signs of solids every now and then. Still going more often than I’d like, but it’s way more controllable than the stoma was – plus no more bag to change frequently and more importantly, no accidents since my surgery. My staples have been removed and my new scar is healing. I have a shallow hole where my stoma used to be which is getting shallower by the day.

Still several more weeks before I can lift anything heavier than a gallon of milk, but I can walk and stand upright. I even have permission to get on my exercise bike and next week I’m going to ask about being allowed to work from home so I can at least catch up on emails. Things are looking up and I have no regrets about undergoing the surgery.

Physically, I did lose some weight again through the ordeal and am now at about 190 pounds. The lightest I’ve been in some time. Given how fast food is still flowing through me, I may get down to the mid-180 range before things settle down. The good news though is that my bodyfat% seems to be dropping in relation to my muscle mass. So though I’ve lost some of both fat and muscle, the fat loss has been greater. I’ll be in a good position for rebuilding once I’m able to lift again.

About 3 weeks post-operation. My shoulders seem to have lost some mass again.

Arms are a little smaller and flatter, too. The shirt I’m wearing used to be much tighter and now I have the dreaded sleeve gap.

Onward!

Giving Thanks

Last year on Thanksgiving I hit my head while playing kick ball with my cousins (yeah, we’re not exactly the Kennedys). This led to me having an EKG and the discovery that sometime in the past that I had a heart attack, which led to changing my Crohn’s medication for fear it was effecting my heart function, which led to a bowel perforation and my current ostomy.

So what am I thankful this year? Just being alive and able to celebrate another Thanksgiving with loved ones!

Which may be as much as any of us should be thankful for.

Onward!

Crohn’s Update: Accidents

Warning: this blog entry contains very frank content regarding bodily waste. It may not be appropriate for all audiences. Plus, you may learn more about me than you really want to know. But, if you’ve been reading my blog we both know that ship sailed a long time ago. 

I mentioned in an earlier blog (Crohn’s Update: Life as an Ostomate – What I’ve Learned So Far) that “accidents” will happen. Yesterday was for me the perfect storm of accidents and I thought I’d share to illustrate my point.

You should understand that I had last changed my appliance on Saturday morning. I should change it every 3 to 4 days in the perfect world, so I had planned to change it in the evening before retiring for the night as by my count that would have been 4 full days.  It’s also best to change the appliance (aka “the bag) when the stoma is less active. Which is usually in the morning or two or three hours after I last ate. In general though, I was feeling a little cocky as this had been the longest I had gone without incident in the past 4 weeks. I thought that I had gotten the hang of it and there would be nothing but smooth sailing from here on out. Riiiight.

I got through most of the workday without a problem. Then about an hour after lunch – when I knew my stoma would be active again (by the way, some people name their stomas – and possibly other body parts but that’s none of my business – I haven’t. My fingers don’t have names nor my toes, why should the stoma be any different?). I felt the  the bag fill up. I went to the restroom – conveniently located across the hallway from my office – to empty it and discovered that I had a small leak from the left side of the ring. The good news was that the dressing from my wound had absorbed most of it so my clothing was still dry including my underwear. I didn’t bring my emergency kit (extra bag, seals, etc) into the restroom so I cleaned up and went back to the office, shut the door, took out an extra seal from my kit and patched the leak. Problem solved!  I could make it through the rest of the day – darn, I’m good.  But, I determined to change the bag as soon as I got home.

I went the rest of the workday without a problem, as expected – yay, me again – and on the way home I remembered that I needed to stop at Costco to get my new membership card (I had signed up last week during a promotion at work). My patch was holding so I exited the expressway and went to the store.

Got my card with no problem, except the wait – not sure what the issue was but there were about five associates and one supervisor crowded around a cash register trying to help one customer while the line grew longer. Not Costco’s best “customer service” moment, but having spent time in retail I understood and waited patiently. Unlike the woman in front of me who left and the man behind me tapping his toe. But, I digress. I felt that my bag was getting a little full so after I got my card I went to the restroom to empty it before I looked around the store. I noticed the $1.50 hot dog combo and thought that I might have found my dinner.

In the restroom, much like anyone else would do, I sat down to do my business. For those who haven’t dealt with an appliance before, I found that it’s easier to empty from the sitting position. When standing it splashes too much and there’s a greater chance of mishap – or so I thought. This does involve dropping “trou” as they say and I’m sure most of you are familiar where the clothing ends up in front of you and the bowl. I removed the velcro fastners which keep the opening of the bag closed and flipped the opening towards the bowl. Instead, I release too soon and miss completely! The the contents, mostly liquid, spill onto the floor, into my pants and my underwear. PANIC ensues!

I wad as much of the flimsy toilet paper as I can and blot up the mess from the floor, my pants and underwear. I got the floor pretty clean, for a public restroom at least and I was confident the next person wouldn’t notice the spill or end up with any residue on their clothing. My pants and underwear, not so much. I felt that I had no choice at this point. I wasn’t about to go to the sink half naked to rinse off the remaining waste and I couldn’t sit there all day waiting for my clothes to dry. So, I pulled up my clothing, fortunately the contents all spilled inside and I didn’t see any obvious stains on the exterior of my clothes, winced at the wetness, untucked my shirt to cover as much of my pants as possible, and exited the stall. I washed my hands while checking myself in the mirror to see if I had covered up any spots that might start to show. On the way out I grabbed a handful of napkins from the snack counter (hey, I’m a member now) and passed up the quarter pound hot dog with drink for $1.50 (sigh) and headed straight to my car. “Have a nice day!” the cheerful attendant (guard?) at the door called after me.  Too late ma’am, too late.

At my car I put down the napkins on my seat to hopefully absorb any liquid that might soak through and drove home sitting in my own filfth (if you have a better way to describe it, feel free). Lovely…

Once at home I was pleased to find that the napkins I was sitting on were still dry and that the stain guard of my new pants, pleated to better hide the appliance, must work both ways as they seemed to contain the remaining moisture pretty well. Changed my clothes and checked my appliance. My patch from earlier in the day was still holding so I thought I might as well go visit my mother and like a good son take some laundry with me (I didn’t want the stain to set into the afore-mentioned new pants). For those who don’t know, unlike many adults living on their own I don’t own a washer and dryer. Hey, I have to have some social life right? And what’s more fun than a trip to the laundromat on a Saturday night? But I digress.

My mother was gracious enough to allow me the use of her washer and dryer while I helped her with the crossword and we watched a little television together (Wheel of Fortune, Jeopardy, and NCIS for those interested). When NCIS was over I folded my clothes, noticed that my bag was once again filling up so I emptied it, and then headed home to change the appliance. Life was good and everything seemed fine.

I got home, took my laundry in and started to put it away when I felt a wetness in my pants. A wetness that started to flow down my leg – down both legs! Dagnabit, I exclaimed, I sprung another leak. I once again “dropped trou” only to discover that I had not sprung a leak. I had neglected to re-attach the velcro straps after the last time I emptied the bag. My now active stoma was dumping itself straight through the bag and down my leg. At this point I did what any self-respecting ostomate would do in this situation. I uttered a few more well chosen exclamations (shoot, crud, and golly-gee if I recall correctly) and cried.

In that moment I just wanted to be normal again, I was tired of having this thing attached to me (after only 6 weeks), I hated that I was having more problems and accidents in one day than I think I ever had in 30 years of suffering with Crohn’s. I felt like a freak who couldn’t take care of himself and I just wanted it to go away.

Then, like a big boy, I stood up. Realized that the pity party wasn’t going to do any good. Also realized that two of the three incidents I just had were my own fault for being careless. Took myself and my jeans to the shower and cleaned up. I also thought of that saying, “people say to me ‘I don’t know how you do it’ and I reply, ‘I wasn’t given a choice.'”

Then I changed my bag, watched some reruns on television (American Dad followed by Hogan’s Heroes) and went to bed, warm and dry.

As Miss O’Hara would say – tomorrow is another day.

Onward!

Crohn’s Update: It Finally Happened – Surgery!

“Mr. Wahr, Mr. Wahr? Do you know what’s happening?” the young med student who just woke me at 4:00 A.M. asked me.

“I think so,” I replied. I had come in to the University of Michigan Hospital less than 24 hours earlier with abdominal pains that didn’t feel like a normal Crohn’s attack. Something was off so after much hemming and hawing I finally decided that given my heart history I really couldn’t take the chance that something was really wrong. Especially since the pains had started the day before and weren’t lessening as was the usual pattern with my Crohn’s, “but why don’t you tell me.”

She looked at me with sympathetic eyes and said, “you’re going in for emergency surgery. A surgeon will be in shortly to explain.”  Surgery? I had certainly anticipated this. In the Emergency Department they had determined that I had what they called a “micro fissure” of the fistula in my ileum. But, at least at that time, they didn’t think I needed surgery within 12 hours. So I had been moved to a room for observation.

Almost as soon as she finished her sentence a young man appeared at my bedside – why are all doctors so young now? –  in a polite, but firm tone he said, “Mr. Wahr, I’m sorry but you need to sign some forms to authorize surgery. Here, here, and here.”

“Surgery?” I asked.

“Yes, we can’t get your fever under control. Our only choice is to go in and remove the cause of the infection. Otherwise your prognosis…we’ll it isn’t good,” he said in a quiet, somber tone. I understood what he was telling me and started signing the forms.

“I need to tell you of all the possibilities of having this surgery,” and he listed off the usual complications and issues and then added, “and you may end up with a stoma.” By this time another surgeon had joined the growing group at my bedside. She seemed to be in charge.

“May end up with a stoma?” I asked, “how likely is that?” The new surgeon answered, ” well, we never go in planning to create a stoma, but until we go in I can’t say for sure. They’s be coming to move you to surgery in a few minutes.”

The doctors disappeared and my nurse appeared to start prepping me for moving to pre-op. As she moved my IV bags the transport team came in. “We’re going to take you down to surgery now,” the nurse said. I grabbed my phone and sent a quick text to my brother. If something happened during surgery, I wanted someone in my family to know what happened while they slept.

In pre-op I was greeted by even more medical staff. One of the anesthesiologists started to ask me a slew of questions, a woman who identified herself as a nurse held my hand and spoke to me in a comforting manner, then I heard doors open, multiple footsteps and could feel the group around me stiffen a little.

“Mr. Wahr, I’m the faculty surgeon overseeing your operation. Here’s what’s happening. The fissure you have is worse than we thought. The contents of your bowels are emptying into your abdominal cavity, causing infection. If we don’t go in and stop this, we won’t be able to bring the infection under control. The outcome will not be positive. Do you understand?” I nodded that I did. “We’ll remove the damaged areas of your intestine and when you wake up you will have a stoma. Do you know what this is?”

“Yes,” I replied, “but it sounds better than the alternative.”

“It is,” the surgeon replied. “You’ll be going into surgery now.” And with that they began to wheel me to the operating room. I noticed the time on a clock. It was not even 5:00 A.M. They were not wasting any time which told me all I needed to know about the seriousness of my situation.

A quick trip down the hall, during which I mostly observed the ceiling, and we were in the operating room. A white, sterile looking space filled with equipment and a woman sitting in the corner covered with a blanket around her shoulders. Part of the anesthesiology team perhaps? I’ll never know. A quick transfer from my bed to the “table” and the voice of the anesthesiologists who spoke to me earlier. “Are we ready? Okay, here we go.” A mask was put on my face and just as I was wondering if this was it and would I ever wake up, everything went black.

Next thing I knew, I heard a disembodied voice asking me questions, “Mr. Wahr, can you tell me where you are?”

“U of M Hospital, I’m having surgery.”

“Very good, everything went well. You’re going to a room now.”

I continued to drift in and out of consciousness for an unknown amount of time. It was about 10:00 A.M. when I finally seemed to actually wake up. I said a silent prayer thanking God for letting me wake up and yet another doctor came into my room. This, I would later learn, was the “attending” doctor for the intensive care unit I was in.

“Mr. Wahr? How are you doing?” he asked.

“I guess fine. Considering.”

“Yes, I understand. The good news is that the surgery went well. You do have a stoma, but the infection and fever are gone and you should make a full recovery. You were lucky,” he paused to consider his words carefully, “this was the kind of thing that people die from.”

“So I hear.”

He went on to tell me a little more about the surgery and that the surgeon would be in later to check on me (as he did each day I was at the hospital). He then left me with the nurse so I could settle in.

Thus begins my newest adventure with Crohn’s. In a way I always suspected that this day was in my future – yet it was still a surprise when it happened. Many Crohn’s patients end up in surgery and with stomas. I’ve managed to avoid it for more than 30 years so in that sense I’ve been fortunate. And there is the possibility that in 6 months or so, presuming that the Crohn’s is under control, that I could be “hooked back up” so that my colon can be useful again. So, all in all, I’m handling the situation pretty well.

My current concerns while I recuperate and adjust to life with an appliance attached to my side (which does get changed every three to four days): 1) dehydration – most of the water for the body is absorbed by the colon. It will take time for my small intestine to realize it needs to pick up the slack; 2) weight loss – even though my appetite is good, food is still passing through my intestine too quickly. As a result, I’ve been slowly losing weight (almost a pound a day). Something a lot of folks dream of, but be careful what you wish for. When I was first diagnosed with Crohn’s I dropped down to about 140 pounds from my then previous weight of 180 pounds before being stabilized. I sure don’t want to be that thin again. Plus, all the weight seems to be disappearing from my chest and shoulders and thighs. Not my belly where I really don’t need it. Muscle loss is certain at this point. There goes the last 30 years of training down the drain; 3) infection, which I’ve avoided so far, always a risk after surgery but especially for someone with a weakened immune system; 4) controlling the Crohn’s. My past medical regimen didn’t prevent the fissure which is an indication that the treatments weren’t working. The interesting thing now is that my Crohn’s has historically been localized to the ileum. Now that my ileum, about a meter’s worth of small intestine, is gone the question is will my Crohn’s flare up somewhere else?

That’s it in a nutshell. I’m managing to deal with the appliance pretty well so far with only a couple mishaps (one in the doctor’s office) and I’m looking forward to returning to work soon.

Of course, I’ll keep blogging about my experience in the hopes of helping someone else with the same or similar situation. There’s always hope folks and we are all in this together.

On a side note, I had an interesting experience that was repeated with three nurses as they prepared to give me an injection in the back of my arm. It went something like this:

“Left or right arm?” the nurse asks.

“Doesn’t matter. Left.” I reply.

“Okay,” takes my arm to prepare the injection site. Stops and says, “oh, I’m not sure what this is. Is there a tumor in your arm? Or is that your tricep?”

“I hope it’s my tricep.”

“Yes, I guess it is. Not used to seeing a tricep like this. Very impressive.”

Now, I can’t be sure if the comment – from three different nurses – means I have an oddly shaped tricep or if they just don’t expect a relatively well developed tricep on a…ahem…mature man (though I think it’s looking pretty puny right now). I’ll go with the latter as it makes me feel better about myself. You have to look for the positive in every situation after all.

Onward!

Not a Tumor

Fitness Quest: Spring and Summer 2018

Wow, it’s been a long time since I’ve posted (April) so there’s a lot to catch up on. Mostly good…

Crohn’s: we, my gastroenterologist and I, have decided to change my medication and I’m no longer on Humira and have switched to Entyvio (vendolizumab). She, my gastroenterologist, strongly suspected that the Humira wasn’t keeping me as well controlled as I thought and after consultation with my cardiologist – who now gets consulted by every doctor I have – recommended that I try something else. I’m all for anything that can better control my symptoms, of course, and so I now get infusions instead of taking a weekly injection. I’ve had some flares since starting the new treatment, including one that sent me to the emergency room while traveling out of town.

The issue wasn’t the Crohn’s directly, as the pain wasn’t that bad, but dehydration

ambulance architecture building business
Photo by Pixabay on Pexels.com

brought on by the Crohn’s. I just wasn’t going to take a chance since we think that a Crohn’s attack brought on my heart attack and my symptoms (severe chills) were just too unusual for me. I was so cold, inside my hotel room under my blankets, that if I were outside camping I would have thought I had hypothermia.

Long story short, one ambulance ride and two IVs of fluid later, I was back at my hotel feeling a whole lot better.

I’ve had one or two other minor flares since starting the treatment, but I’m still within what they call the “ramp up” phase of the infusions so the drug hasn’t reached it’s full efficacy (full effectiveness) yet. My next infusion is August 9th so we should know by then.

In addition to the Entyvio, we are also being more aggressive in treating my anemia – presumably caused by the Crohn’s – and have started getting iron infusions as well. Interestingly enough, if these work I’ll only need two and the benefits will last months and possibly years! The first infusion was this week and so far no side effects so we know I didn’t get too much iron. The second is next week and it will then be a few weeks after that before we know if it works. If all goes well I’ll have more energy and actually be breathing easier as well. Which means, you guessed it, less strain on the heart (concern #1).

Cardiac Health: I finished my cardio rehab with flying colors. My exercise therapist said I was a star pupil and an example for others and sent me off with instructions to

black and white blood pressure kit
Photo by Pixabay on Pexels.com

continue my work and a hope that he never sees me again – at least in rehab. If anyone out there has a heart issue and is offered the opportunity to take rehab DO IT! I left knowing my body better and more importantly my limits. I can judge when I might be pushing too hard and, just as importantly, when I’m not pushing hard enough.

Thanks to rehab I had the confidence to run in the Rose Run again this year.  This is the annual 5K to support breast cancer research held in Petersburg, Michigan in July and Burbank, California in October. If there are two more disparate communities to host the same event out there I couldn’t tell you where they are! Anyway, I didn’t beat my time from last year (sob), but I finished feeling good and, here’s the important part, without a cardiac event!

Massage:

board brown daylight destination
Photo by Pixabay on Pexels.com

I got my first deep tissue massage. I’ve been having some intermittent muscle pains, especially in my chest, and my primary care physician suggested massages as a regular treatment. Well, while traveling on business I was a spa in Saratoga Springs, NY and some free time so I treated myself to a mineral bath and a deep tissue massage. Wow! I had no idea how tight I was until my masseuse started her work. I was never in pain, but came close. She also confirmed that I had a couple substantial “knots” in my chest that one massage wasn’t going to get rid of. So she gave me a couple stretches to do on my own and suggested fascial stretch therapy. I’ve been looking into this and will likely give it a try within the next couple weeks. I’ll blog more on this later.

Yoga: 

man wearing white pants under blue sky
Photo by antas singh on Pexels.com

I did start yoga, but have fallen off the wagon. I need to get back on it as this does help with stress, breathing, flexibility, and a lot of other benefits. I been using routines on youtube led by Adriene. Her videos were suggested by a friend and I find her teaching method to be easy to follow and a good introduction to yoga. Plus, you can do it from your home. I’m sure most would say that a video can’t replace a good in person instructor, but honestly, I’m not reading to show my downward dog in public yet – let alone a warrior three!

Nutrition: Um, yeah, about that. Did I mention that I was traveling a lot? I have a lot of “adjustments” to make.  Moving on…

beef blur bread bun
Photo by Foodie Factor on Pexels.com

Overall Fitness: I’m still lifting weights a couple times a week. Not seeing much progress in this area and I haven’t been pushing. It’s time to make a few changes and a few gains. I can’t go heavy on lifts like the bench press anymore (see cardiac health) but as long as I don’t raise my blood pressure I can do pretty much everything I used to. Weight lifting was part of cardio rehab so I see no reason not to continue. Too many people don’t realize that strength training is especially important as we get older.

man in grey shirt and black bottom lifting barbell
Photo by Frame Kings on Pexels.com

I’ve read that the average man without training loses about 10 pounds of muscle each decade after the age of 30 (yes, 30). Regular resistance training (i.e. weights) can slow down and even reverse that loss. In fact, I would say in my case, I was actually at my strongest in my late forties. I may never bench 350 again but I can be stronger than I am now and less likely to fall and break something! I suggest you do the same.

Onward!

Mediterranean Diet

Fitness Quest: September 2017

A busy month for me as it turns out that was pretty good all in all despite getting back some iffy blood tests from my doctor on Monday. Nothing terribly serious, but we’ve got a couple things to watch regarding my liver enzymes as they spiked which is an indication of liver damage which is one of the side effects from my medication. So far no word on an ultra-sound to check things out, so I’ll follow-up. The numbers aren’t very high above the normal range. Everything else was pretty good though except for my iron and vitamin D levels. So back to the supplements. Ugh.

Crohn’s Update: In addition to the above, I’m actually feeling pretty good these days. I have energy it seems – which may be in part to the iron, vitamin B and other supplements. But I’m not complaining. Still not “normal” by most people’s standards, especially in the bathroom if you get my drift, but pretty darn close I think (i.e. no accidents or emergencies in a long time). Met with my new gastroenterologist and like her a lot. Very good doctor/patient rapport and she did her homework on my case before coming seeing me!

Workouts: I got all my weight workouts in despite a tough rehearsal schedule for the show I’m in (It Came from Mars at the Toledo Rep). This included two on Thursday, one before rehearsal in the gym (shoulders and back) and one after rehearsal with my brother-in-law (chest). In the past week I’ve been feeling particularly good. I’m waking up better in the morning and getting my daily push-ups (up to 30 per set) and concentration curls (gotta build that biceps peak) each morning.

Results are coming with my weight training, though slower than I’d like (naturally). My arms – the left one at least – are back over 16 inches cold and I think look a lot better (more defined – they are also harder it seems). Probably more importantly, I’m getting more reps in per set with my bench and increasing weight in other lifts. Not at my strongest yet, but not bad for an old man (8 reps at 225 for three sets currently). The goal is still 25 continuous reps at 225. Getting there slowly – thought my brother-in-law and training partner is getting stronger by the workout lately. 

Speaking of who, he unintentionally provided some big motivation this week. During our Sunday workout it was pretty obvious that he had his “swole” on – as in his short sleeve shirt was stretched to its max. Turns out he’s gone through a recent growth spurt sometime in the last three months, if not in the last couple weeks, especially in his arms and chest.  He now leads our “arms race” by a little more than an inch and is still growing. It’s a mystery to me why after several months of essentially the same workout he grew, though I’ve read somewhere that muscle growth occurs in spurts and isn’t a straight line gain kind of thing. He thinks it’s just from being consistent which is true as we’ve rarely missed a workout in the past year or so, I think maybe he adjusted his diet somehow or perhaps unbeknownst to us he was “belted by gamma rays*” though he isn’t turning green. However, instead of being jealous (okay, maybe a little) as I may have been when we were younger, I’m finding myself motivated to hit it harder in the gym and other workouts to catch up. Or at the very least, not fall farther behind. So even though we shouldn’t judge or compare ourselves to others, a little competition between friends is a great motivator it seems.

jacobsladder-3-full

Cardio: thanks to my sister, I’m really stepping up my step game (pun intended). She’s been pushing a weekly “workweek hustle” on Fitbit and gotten several others to join in. I used to think I walked a lot during the day but now, whew! I’m also working harder to keep up with her.

Discovered a new cardio device at the College gym called “Jacob’s Ladder” (here’s their website – I’m not reimbursed for this endorsement btw) If you haven’t used one of the things and have the opportunity to do so – DO IT! One of the toughest cardio workouts I’ve ever had and it also works the arms and legs at the same time.

Nutrition: I met my protein goals most days this week, thanks to Muscle Milk and protein bars (again, not an endorsement – research all supplements before using). I’m surprised at how difficult this is. Especially without increasing fats, which unfortunately, I have not mastered. However, I have cut down on my carbs including simple sugars considerably. Turns out you can live quite well without french fries. Who knew?

Other Cool Things this Month: got an unexpected and random compliment on my triceps; had a pleasant conversation with a cashier about Fitbits – the young ladies really like the leather band it seems 😉; and had another good conversation about working out in general late in the week with another friend. 

All in all a surprisingly motivating week.

Onward!

*obscure reference to lyrics from a Marvel cartoon show in the 1960s. Bonus points if you know which one and just saying “Hulk” doesn’t count.

More bonus points if you know where the featured image is from.

 

Crohn’s Update: July 2016

Wow! I knew I hadn’t been blogging for a while but I didn’t realize it’s been 3 months. I’ve been busy I guess but I haven’t forgotten my fitness goals and efforts. So, here’s the update for those interested:

Crohn’s – doing well. The Humira treatment seems to continue to work. I wouldn’t call what I’m experiencing full remission, but it’s close. I’ve had a few “queasy” days this summer but nothing major to keep me off work or anything. I’m due for another round of testing/scanning/probing this fall and I expect that I’ll here that my condition remains essentially unchanged from last year. Which would be the best news I could expect (the damage can’t be undone, but if further damage is prevented that’s all I need to keep avoiding surgery).

Fitness: I did pretty well again, for me, with the Rose Run 5K that I’ve been participating in. I beat my time from last year thanks in large part to the urging and support of my niece who ran with me. So this is the third straight year of doing better than the year before! My new goal is to get below a 30 minute 5K. I came in 4th in my age group with 5 behind me by the way. My official time was 41:55 and I’m several minutes faster than when I started 5 years ago. Not a huge change, but a positive one. Especially given how little I actually train for it.

I’ve been keeping up with my weight workouts with my brother-in-law. The weight is going up, my body weight is going down (usually), my waist is shrinking and my biceps are growing. Things are on track in this area.

I participated in a “22 Push Ups for 22 Days” to raise awareness of Veteran Suicide. On average, 22 vets in the USA commit suicide each day. This was a pure awareness campaign but I thought an important one. Plus, doing the push ups each day really seemed to up my feeling of well-being each day. I’m continuing to do them even though the challenge is over. I’m planning to work my way to 100 per day (in one set) by the end of the year.

Mountain Climbing: as a benefit of my increased fitness I took on the challenge of climbing the 2nd highest mountain in the contiguous USA (Mt. Elbert) when visiting Colorado this summer. Unfortunately, I only made it to 13,000 feet and was about 1,400 vertical feet short of the summit. It was a fun day nonetheless with a couple cousins who live in Colorado (they made the summit). The thin air was too much for me – or rather not enough for me. Next time, I acclimate at a higher elevation for several days. Next goal though is to fail to summit the highest point in the contiguous USA – Mt. Whitney in California.

Nutrition: as mentioned earlier, my weight has been decreasing. But, in my continuing quest to build muscle while losing fat I’ve been experimenting with my diet. My most recent experiment was to reduce my carbs significantly and increase my protein. There have been some conflicting studies on the effectiveness of this. But, I’ve known a couple people who really dropped the weight while doing this and my limited experience so far is that it does work. I’m still playing with how to add some carbs back in occasionally, since they have a place in the overall healthy diet and maintaining daily “energy,” so more on this later.

Mental Health: overall, I’m still a happy and positive person. Sure, I have my moments like everyone else, but I don’t have much to complain about. My “new” job is going well with supportive co-workers and supervisors, my friends are few but close, my family closer and my faith is strong. The only thing that threatens my well-being right now is the back and forth bickering on Facebook concerning the presidential campaign. Just a few more months…

So, overall things are good. I feel healthy, I look healthier, and I’m more active than I’ve been in a long time. Old age is still creeping up on me (I notice more daily aches and pains) but I’m putting it off as long as I can and hope you will do the same.

Onward!

 

Fitness Quest: Weight Loss, Running, Weights, and Crohn’s

It’s been a while since I’ve posted a new blog so I figured at the very least I should update everyone on my continuing quest for greater fitness as I move through middle age (better than the alternative, right?).

The good news is that there is no news. My Crohn’s has been pretty calm since I’ve started taking Humira several months ago. Sure, I have a grumble here a little constipation and/or diarrhea there but no days long bouts of intense pain and lack of energy and overall “pushing” just to get started for and through the day. I have a CT Scan on Monday and hopefully it will show that there has been no significant progress of the disease putting off the day I’ll need surgery for a little longer.

On a tangent – I attended an IBD Patient Update hosted by the University of Michigan IBD team and the Crohn’s and Colitis Foundation of America with participants from Henry Ford Hospitals and Baylor University. A lot of good information from this session. I finally learned that my medicine may costs about $40,000 a year for those who don’t have insurance (yikes!). No cure is on the horizon but several potentially game changing treatments are in clinical trials. It also reaffirmed that given what could have been that I’ve been very, very fortunate with my Crohn’s. It turns out that 44% of patients with Crohn’s have required surgery by 9 years after diagnoses. Me, I’ve gone about 30 so far. Surgery, if it goes well, often does provide relief. But too often it is temporary and then there are a host of potential complications. Most that I don’t even want to think about but may discuss later.

I haven’t been running lately, trying to rest my shins and recondition them before running again. The pain was getting pretty bad. However, I am keeping up with my walking and watching my diet. I need to move from just counting calories to better tracking my “macros” though. I think if I up my nutrition that I’ll make better gains in the weight room and with fat loss.

Speaking of the weight room, it’s been a couple weeks since I’ve started lifting again regularly. I was pretty sore after the first couple workouts but I’m doing better and my lifts are getting heavier. I’m also working out about once a week with my brother-in-law again and he helps to push me simply by staying ahead of me in his bench press. Though this should not stop you from trying. Friendly competition never hurts as long as you don’t get hung up on the fact that some people will always be better than you at something. In fact, I’m still “competing” with a couple friends to see who can do better over the course of time in terms of fitness goals. Celebrate other peoples success and you’ll be happier in the long run (trust me).

So, overall, I’m down in weight about 15 pounds since this time last year. I’m stronger, faster, and feeling pretty good overall. Not where I want to be, who is after all, but getting a little closer each day.

Onward!