Wow, it’s been a long time since I’ve posted (April) so there’s a lot to catch up on. Mostly good…
Crohn’s: we, my gastroenterologist and I, have decided to change my medication and I’m no longer on Humira and have switched to Entyvio (vendolizumab). She, my gastroenterologist, strongly suspected that the Humira wasn’t keeping me as well controlled as I thought and after consultation with my cardiologist – who now gets consulted by every doctor I have – recommended that I try something else. I’m all for anything that can better control my symptoms, of course, and so I now get infusions instead of taking a weekly injection. I’ve had some flares since starting the new treatment, including one that sent me to the emergency room while traveling out of town.
The issue wasn’t the Crohn’s directly, as the pain wasn’t that bad, but dehydration
brought on by the Crohn’s. I just wasn’t going to take a chance since we think that a Crohn’s attack brought on my heart attack and my symptoms (severe chills) were just too unusual for me. I was so cold, inside my hotel room under my blankets, that if I were outside camping I would have thought I had hypothermia.
Long story short, one ambulance ride and two IVs of fluid later, I was back at my hotel feeling a whole lot better.
I’ve had one or two other minor flares since starting the treatment, but I’m still within what they call the “ramp up” phase of the infusions so the drug hasn’t reached it’s full efficacy (full effectiveness) yet. My next infusion is August 9th so we should know by then.
In addition to the Entyvio, we are also being more aggressive in treating my anemia – presumably caused by the Crohn’s – and have started getting iron infusions as well. Interestingly enough, if these work I’ll only need two and the benefits will last months and possibly years! The first infusion was this week and so far no side effects so we know I didn’t get too much iron. The second is next week and it will then be a few weeks after that before we know if it works. If all goes well I’ll have more energy and actually be breathing easier as well. Which means, you guessed it, less strain on the heart (concern #1).
Cardiac Health: I finished my cardio rehab with flying colors. My exercise therapist said I was a star pupil and an example for others and sent me off with instructions to
continue my work and a hope that he never sees me again – at least in rehab. If anyone out there has a heart issue and is offered the opportunity to take rehab DO IT! I left knowing my body better and more importantly my limits. I can judge when I might be pushing too hard and, just as importantly, when I’m not pushing hard enough.
Thanks to rehab I had the confidence to run in the Rose Run again this year. This is the annual 5K to support breast cancer research held in Petersburg, Michigan in July and Burbank, California in October. If there are two more disparate communities to host the same event out there I couldn’t tell you where they are! Anyway, I didn’t beat my time from last year (sob), but I finished feeling good and, here’s the important part, without a cardiac event!
I got my first deep tissue massage. I’ve been having some intermittent muscle pains, especially in my chest, and my primary care physician suggested massages as a regular treatment. Well, while traveling on business I was a spa in Saratoga Springs, NY and some free time so I treated myself to a mineral bath and a deep tissue massage. Wow! I had no idea how tight I was until my masseuse started her work. I was never in pain, but came close. She also confirmed that I had a couple substantial “knots” in my chest that one massage wasn’t going to get rid of. So she gave me a couple stretches to do on my own and suggested fascial stretch therapy. I’ve been looking into this and will likely give it a try within the next couple weeks. I’ll blog more on this later.
I did start yoga, but have fallen off the wagon. I need to get back on it as this does help with stress, breathing, flexibility, and a lot of other benefits. I been using routines on youtube led by Adriene. Her videos were suggested by a friend and I find her teaching method to be easy to follow and a good introduction to yoga. Plus, you can do it from your home. I’m sure most would say that a video can’t replace a good in person instructor, but honestly, I’m not reading to show my downward dog in public yet – let alone a warrior three!
Nutrition: Um, yeah, about that. Did I mention that I was traveling a lot? I have a lot of “adjustments” to make. Moving on…
Overall Fitness: I’m still lifting weights a couple times a week. Not seeing much progress in this area and I haven’t been pushing. It’s time to make a few changes and a few gains. I can’t go heavy on lifts like the bench press anymore (see cardiac health) but as long as I don’t raise my blood pressure I can do pretty much everything I used to. Weight lifting was part of cardio rehab so I see no reason not to continue. Too many people don’t realize that strength training is especially important as we get older.
I’ve read that the average man without training loses about 10 pounds of muscle each decade after the age of 30 (yes, 30). Regular resistance training (i.e. weights) can slow down and even reverse that loss. In fact, I would say in my case, I was actually at my strongest in my late forties. I may never bench 350 again but I can be stronger than I am now and less likely to fall and break something! I suggest you do the same.