Crohn’s Update: Good News and Frustrations of a New Ostomate

As I sit here eating my lunch – because my appetite is still quite strong – I was thinking about a few things regarding my surgery and recovery. Thought I’d take a few minutes to share them because, why not?

Healing: the healing process is frustrating slow. Not regarding the stoma, that seems fine, but the darn incision. Most of the incision is healed and scarred (lovely) but a couple spots just don’t seem to want to close and keep oozing. Not blood, but exactly what you think of when you hear or read the word “ooze.” So, I’m changing dressing twice a day to keep up with the flow and trying not to get too grossed out when I do. Yesterday at the doctor’s office he essentially cauterized a couple areas of what he called “granulation.” When talking about skin healing, granulation is the process where new tissue is created to fill in the gaps of the wound. It starts from the base up, so for a deep wound it takes some time. However, in my case, I had a couple areas that overgrew and formed small lumps on the scar. These may have been infected so the cure was to remove them chemically and one by “snipping” it off. The Good News: If all goes well, my oozing should stop in about a week or at least dramatically slow. I’m looking forward to not changing dressing.

Output: I can’t seem to get the hang of regulating the output of my stoma. Everytime I think things are settling down – so I don’t have to empty out every hour – I backslide. I’ve discovered that lemonade is a problem so I have to avoid that. I’m taking imodium like it’s candy (up to four pills, four times a day), and have eaten enough toast, applesauce, bananas, and rice krispies to bind up an elephant! But, I’m spending more time in the bathroom now than before the surgery. The Good News: The doctor thinks I’m making progress and have the tools I need to get there. I’m not de-hydrated and my weight is stable. He thinks I look “great” so there’s that. Of course, he’s only seen me two times now (part of the post-surgery clinic).

Breakage and Leakage: not fun anytime, especially in the middle of the night or when out and about trying to do normal activities. The Good News: I seem to have re-gained the hang of when to change my appliance. No accidents for more than a week now (knock wood).

Enough venting. According to the doctor I’m free of all lifting and exercise restrictions. I plan to start working out – slowly – this week and get back to tap dancing again next week.

And, then there’s my trip to Florida in about two weeks…

Onward!

2 thoughts on “Crohn’s Update: Good News and Frustrations of a New Ostomate

  • I worked with a new Osmote on the road at the senior PGA tour 24 years ago. We drove to Florida for the tournament and his bag had to be emptied numerous times going through the mountains. It was Tough ttip for him.
    If your ears are popping while driving or flying, you’ll probably have the same dilemma. I hope not, but forwarned is forarmed.

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    • Thanks for the heads up. I’ll be flying in a couple weeks and I didn’t think about the potential of air pressure changes (even in a pressurized cabin). I’ll have my “emergency” kit with me (spare appliance, tape, pads, etc.) but now I’ll be sure to pay extra attention while in the air. Plus my special “go to the restroom free – clear the aisle for me” card to show the flight attendants if I’m in a real panic!

      Like

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