Well, I’ve been away from this blog for far too long! I’m sure that both my fans have been wondering what I’ve been up to fitness-wise so here it is: not much.
I don’t have to tell anyone that 2020 was, at best, a weird year. For me the biggest adjustment was working mostly from home and I acknowledge that I’m fortunate to be able to do this. The other big adjustment was not being able to travel as I normally would. So you might think with all of this unscheduled free time being given to me because my normal after work activities being halted, especially community theatre as the biggest “time hog,” that my focus on fitness would have skyrocketed and that by now I’m a mass of lean, mean, old man muscle. Well, not so much.
Gyms closing didn’t help but that wasn’t the real issue. My biggest issue was adjusting to cooking at home. Which, if done right, is the way we should all go. However, I found that when confronted with a full refrigerator and pantry all day I tended to “graze” all day in addition to my regular meals. So like so many others my weight creeped up during the past nine-months but went way up starting about July according to my fitbit. I think the combination of eating all day and the loss of my regular cardio classes just finally caught up with me despite my regular walks. I also suffered a mysterious shoulder injury in September so my lifting was impacted. My bench press in particular. I did manage to continue weight workouts with the personal trainer in his home gym and with my brother-in-law in his. The spring, summer, and early fall saw me taking regular walks with my sister mostly every night. But the extra fat has refused to budge.
So, in an effort to make a change I’ve given into the marketing and am trying Noom. I have plenty of suggestions on how to improve the product which might be worthy of another blog entry after a few more weeks, but so far so good. It’s helped to remind me of things I already knew and I’m down about four (4) pounds so far (almost 2 kg).
Things I did discover while cooking for myself this past year – I do like a fairly wide variety of foods. The heart healthy Mediterranean diet is interesting and not that hard to make. Vegetables and fruits are filling and also tasty. Don’t get me wrong, hamburgers and fries are still a big portion of my diet (too big) but I do see the way and the light. Plus one of my new past-times is looking through cookbooks and thinking to myself “I can make that.”
The biggest news – I got through 2020 without a major health crisis! No ER visits, no surgeries. The Stelara I take to control my Crohn’s seems to be working and my gastroenterologist says that there is no sign of the disease. This means that, for the moment at least, I should be able to become as fit as my middle-aged body will let me. Yes, I still have a damaged heart from a previous heart attack. Yes, my kidneys are still below optimal function from my bout with Norovirus last year (did you forget that their are still other viruses out there waiting to get you? Keep washing your hands and covering your faces folks – thanks) but overall I’m stable and healthy. Minus a few occasional aches and pains. Also, I find it ironic that I can lift a small car off my chest if necessary (a very small car) but have trouble getting up off the floor. It’d be funny if it weren’t so true.
So, I’m done with 2020 and ready to move on to 2021. I can’t control what the world may have in store for me, but I can sure as heck control how I react to it and my own small corner of it.
Warning: as usual with my posts regarding my struggles with Crohn’s this post contains frank discussion of basic bodily functions not usually discussed in polite company. If talk of peeing and pooping make you squeamish, you may want to just move along.
Those of you have read my previous post know that I had gone into the hospital to have what the medical staff referred to as an “ileostomy takedown” or in other words, my internal plumbing was reconnected and all organs that belonged inside my body (the stoma, which was a portion of small intestine pushed out through my abdomen for the removal of waste via an appliance aka “the bag”) were put back inside. This is an operation I had been looking forward to. Even though the creation of the stoma quite literally saved my life, it was an inconvenience to deal with – some of the issues I have described in earlier blog entries.
So, how did it go? Pretty well actually. According to the surgeon the surgery could not have gone better. Unfortunately, this does not mean that there were no issues. The biggest one, from my perspective, was that the epidural given to me to control pain also caused an issue where I could not release my bladder. You see, the epidural provided strong drugs to my mid-section which essentially turned off nerve receptors. The good news is that thanks to this treatment I was up and around pretty quickly. The bad news, I couldn’t urinate. This led to not one, not two, but several different catheters being inserted into my uretha – an uncomfortable procedure at best and in my case painful as apparently one of the times my uretha was “nicked.” As bad as not being able to go was, the sight of blood coming out of where blood should never come out was a bit unnerving to say the least. Plus this caused some pain in my you know what, which prevented me from trying to go. At one time the urine back up was so bad that after one catheter I released 1.2 liters of urine. For comparison, the average male bladder maxes out as about 400 – 600 milliliters. My bladder was pushed to its limit. This extended my hospital visit by a couple days as they wanted to be sure that my urinary function was normal before sending me home.
Well, that and the unexpected vomiting.
The third day post-op my gut seemed to be waking back up. I didn’t actually pass gas or stool yet, but my bowel sounds were active. In fact, one nurse said my gut sounded “hyperactive.” Which usual meant that things were starting to move through my system again and my long unused colon was waking up (so to speak). Wrong. Just as I was about to try to eat some lunch my guts went into full revolt. And very much like the girl in the Exorcist I began spewing everywhere! Since I hadn’t eaten much what came out was a build up of gastric juices and other liquids. The good news is that I learned I could still move quickly despite any lingering internal pain, the bad news is that we discovered how much liquid I could hold in. Turns out, quite a lot.
After these two setbacks, things started to improve quickly. My bowels began moving on day 4 PO (post-op), pretty much pure liquid but I was passing stool and gas. My bladder kicked back in later that same day thanks to some Flowmax and the discontinuation of the epidural. So by day 6 PO I was able to come home.
Now, one day shy of three weeks post-op, my stool is still pretty liquid with signs of solids every now and then. Still going more often than I’d like, but it’s way more controllable than the stoma was – plus no more bag to change frequently and more importantly, no accidents since my surgery. My staples have been removed and my new scar is healing. I have a shallow hole where my stoma used to be which is getting shallower by the day.
Still several more weeks before I can lift anything heavier than a gallon of milk, but I can walk and stand upright. I even have permission to get on my exercise bike and next week I’m going to ask about being allowed to work from home so I can at least catch up on emails. Things are looking up and I have no regrets about undergoing the surgery.
Physically, I did lose some weight again through the ordeal and am now at about 190 pounds. The lightest I’ve been in some time. Given how fast food is still flowing through me, I may get down to the mid-180 range before things settle down. The good news though is that my bodyfat% seems to be dropping in relation to my muscle mass. So though I’ve lost some of both fat and muscle, the fat loss has been greater. I’ll be in a good position for rebuilding once I’m able to lift again.
If all goes well my life as an ostomate comes to an end on Tuesday, April 9th when my ileostomy is reversed and my colon starts to be used again as God intended.
I would be lying if I said that life as an ostomate was easy. There were many challenges, the most difficult and dangerous one being dehydration. In fact, I ended up in the emergency room and a several day stay in the hospital about two weeks ago because of the norovirus and the fact that I didn’t realize I was having diarrhea until it was almost too late.
I had noticed during the day that my output was hiring than usual and that I was thirstier than normal. Because I happened to be at a church conference I more or less ignored this and kept attending to the business at hand. I was drinking, but I didn’t take any additional loperamide HCI (aka Imodium) or other medications that might have slowed down the fluid loss. By the early evening I was starting to feel a little unwell. So, I had some applesauce and rice krispies. I ate a banana, I took the loperamide and drank more water. But it was too late. Chills set in and then came the cramps.
It started with a leg cramp and I thought I had been sitting in the chair funny. So I tried to walk it off. Then the other leg cramped up, then my abdomen – I realized something was horribly wrong and thought I might actually be having another heart attack. So I went to the nearest phone by my bedside and reached for it as I collapsed into my bed thinking “Oh God, this is it.”
I woke up next to my bed, phone in my hand and buzzing at me, items from my nightstand scattered on the floor around me. I was so out of it I didn’t realize that I had actually passed out. I managed to call my sister, who was just getting home from helping my mother – who had also fallen ill (we surmised later that we both caught the norovirus from the same source).
We got to the emergency department of the University of Michigan Medical Center quickly. In hindsight we probably should have called an ambulance as the cramps hit again and I passed out not twenty feet from the entrance.
Pro-tip: want to pass by the waiting room at the Emergency Department? Pass out in their parking lot. I was whisked in pretty quickly. After receiving the excellent care that I am used to from Michigan Medicine I was re-hydrated and my cramps stopped. No cardiac event, but my kidneys had shut down from the stress – that’s how badly I was dehydrated.
Moral of the story?
Ostomates – always pay attention to your fluid intake and output. This can literally be a matter of life and death.
Everyone else – for pity’s sake wash you hands after using the restroom. Norovirus is easily spread in the most minute traces of fecal material. This spread is easily preventable by properly wetting your hands, sudsing with soap for an appropriate amount of time (try singing “Happy Birthday” to yourself a couple times) and drying. When you skip this step you may think you are somehow avoiding germs by not touching things in the bathroom, but you are making the rest of us sick when we shake your hand or come in contact with you later. Especially those of us with lowered resistance due to a compromised immune system. Like all of us with Crohn’s, Ulcerative Colitis, and who knows how many other invisible diseases and the medications we are on.
Please, please, wash your hands. The life you save might be mine!
I’ve learned a lot during my time as an ostomate and I have a greater appreciation and respect for those who cannot have theirs reversed. I hope in some small way I’ve helped you to better understand this experience as well.
Warning: this blog entry contains very frank content regarding bodily waste. It may not be appropriate for all audiences. Plus, you may learn more about me than you really want to know. But, if you’ve been reading my blog we both know that ship sailed a long time ago.
You should understand that I had last changed my appliance on Saturday morning. I should change it every 3 to 4 days in the perfect world, so I had planned to change it in the evening before retiring for the night as by my count that would have been 4 full days. It’s also best to change the appliance (aka “the bag) when the stoma is less active. Which is usually in the morning or two or three hours after I last ate. In general though, I was feeling a little cocky as this had been the longest I had gone without incident in the past 4 weeks. I thought that I had gotten the hang of it and there would be nothing but smooth sailing from here on out. Riiiight.
I got through most of the workday without a problem. Then about an hour after lunch – when I knew my stoma would be active again (by the way, some people name their stomas – and possibly other body parts but that’s none of my business – I haven’t. My fingers don’t have names nor my toes, why should the stoma be any different?). I felt the the bag fill up. I went to the restroom – conveniently located across the hallway from my office – to empty it and discovered that I had a small leak from the left side of the ring. The good news was that the dressing from my wound had absorbed most of it so my clothing was still dry including my underwear. I didn’t bring my emergency kit (extra bag, seals, etc) into the restroom so I cleaned up and went back to the office, shut the door, took out an extra seal from my kit and patched the leak. Problem solved! I could make it through the rest of the day – darn, I’m good. But, I determined to change the bag as soon as I got home.
I went the rest of the workday without a problem, as expected – yay, me again – and on the way home I remembered that I needed to stop at Costco to get my new membership card (I had signed up last week during a promotion at work). My patch was holding so I exited the expressway and went to the store.
Got my card with no problem, except the wait – not sure what the issue was but there were about five associates and one supervisor crowded around a cash register trying to help one customer while the line grew longer. Not Costco’s best “customer service” moment, but having spent time in retail I understood and waited patiently. Unlike the woman in front of me who left and the man behind me tapping his toe. But, I digress. I felt that my bag was getting a little full so after I got my card I went to the restroom to empty it before I looked around the store. I noticed the $1.50 hot dog combo and thought that I might have found my dinner.
In the restroom, much like anyone else would do, I sat down to do my business. For those who haven’t dealt with an appliance before, I found that it’s easier to empty from the sitting position. When standing it splashes too much and there’s a greater chance of mishap – or so I thought. This does involve dropping “trou” as they say and I’m sure most of you are familiar where the clothing ends up in front of you and the bowl. I removed the velcro fastners which keep the opening of the bag closed and flipped the opening towards the bowl. Instead, I release too soon and miss completely! The the contents, mostly liquid, spill onto the floor, into my pants and my underwear. PANIC ensues!
I wad as much of the flimsy toilet paper as I can and blot up the mess from the floor, my pants and underwear. I got the floor pretty clean, for a public restroom at least and I was confident the next person wouldn’t notice the spill or end up with any residue on their clothing. My pants and underwear, not so much. I felt that I had no choice at this point. I wasn’t about to go to the sink half naked to rinse off the remaining waste and I couldn’t sit there all day waiting for my clothes to dry. So, I pulled up my clothing, fortunately the contents all spilled inside and I didn’t see any obvious stains on the exterior of my clothes, winced at the wetness, untucked my shirt to cover as much of my pants as possible, and exited the stall. I washed my hands while checking myself in the mirror to see if I had covered up any spots that might start to show. On the way out I grabbed a handful of napkins from the snack counter (hey, I’m a member now) and passed up the quarter pound hot dog with drink for $1.50 (sigh) and headed straight to my car. “Have a nice day!” the cheerful attendant (guard?) at the door called after me. Too late ma’am, too late.
At my car I put down the napkins on my seat to hopefully absorb any liquid that might soak through and drove home sitting in my own filfth (if you have a better way to describe it, feel free). Lovely…
Once at home I was pleased to find that the napkins I was sitting on were still dry and that the stain guard of my new pants, pleated to better hide the appliance, must work both ways as they seemed to contain the remaining moisture pretty well. Changed my clothes and checked my appliance. My patch from earlier in the day was still holding so I thought I might as well go visit my mother and like a good son take some laundry with me (I didn’t want the stain to set into the afore-mentioned new pants). For those who don’t know, unlike many adults living on their own I don’t own a washer and dryer. Hey, I have to have some social life right? And what’s more fun than a trip to the laundromat on a Saturday night? But I digress.
My mother was gracious enough to allow me the use of her washer and dryer while I helped her with the crossword and we watched a little television together (Wheel of Fortune, Jeopardy, and NCIS for those interested). When NCIS was over I folded my clothes, noticed that my bag was once again filling up so I emptied it, and then headed home to change the appliance. Life was good and everything seemed fine.
I got home, took my laundry in and started to put it away when I felt a wetness in my pants. A wetness that started to flow down my leg – down both legs! Dagnabit, I exclaimed, I sprung another leak. I once again “dropped trou” only to discover that I had not sprung a leak. I had neglected to re-attach the velcro straps after the last time I emptied the bag. My now active stoma was dumping itself straight through the bag and down my leg. At this point I did what any self-respecting ostomate would do in this situation. I uttered a few more well chosen exclamations (shoot, crud, and golly-gee if I recall correctly) and cried.
In that moment I just wanted to be normal again, I was tired of having this thing attached to me (after only 6 weeks), I hated that I was having more problems and accidents in one day than I think I ever had in 30 years of suffering with Crohn’s. I felt like a freak who couldn’t take care of himself and I just wanted it to go away.
Then, like a big boy, I stood up. Realized that the pity party wasn’t going to do any good. Also realized that two of the three incidents I just had were my own fault for being careless. Took myself and my jeans to the shower and cleaned up. I also thought of that saying, “people say to me ‘I don’t know how you do it’ and I reply, ‘I wasn’t given a choice.'”
Then I changed my bag, watched some reruns on television (American Dad followed by Hogan’s Heroes) and went to bed, warm and dry.
As Miss O’Hara would say – tomorrow is another day.
As I sit here eating my lunch – because my appetite is still quite strong – I was thinking about a few things regarding my surgery and recovery. Thought I’d take a few minutes to share them because, why not?
Healing: the healing process is frustrating slow. Not regarding the stoma, that seems fine, but the darn incision. Most of the incision is healed and scarred (lovely) but a couple spots just don’t seem to want to close and keep oozing. Not blood, but exactly what you think of when you hear or read the word “ooze.” So, I’m changing dressing twice a day to keep up with the flow and trying not to get too grossed out when I do. Yesterday at the doctor’s office he essentially cauterized a couple areas of what he called “granulation.” When talking about skin healing, granulation is the process where new tissue is created to fill in the gaps of the wound. It starts from the base up, so for a deep wound it takes some time. However, in my case, I had a couple areas that overgrew and formed small lumps on the scar. These may have been infected so the cure was to remove them chemically and one by “snipping” it off. The Good News: If all goes well, my oozing should stop in about a week or at least dramatically slow. I’m looking forward to not changing dressing.
Output: I can’t seem to get the hang of regulating the output of my stoma. Everytime I think things are settling down – so I don’t have to empty out every hour – I backslide. I’ve discovered that lemonade is a problem so I have to avoid that. I’m taking imodium like it’s candy (up to four pills, four times a day), and have eaten enough toast, applesauce, bananas, and rice krispies to bind up an elephant! But, I’m spending more time in the bathroom now than before the surgery. The Good News: The doctor thinks I’m making progress and have the tools I need to get there. I’m not de-hydrated and my weight is stable. He thinks I look “great” so there’s that. Of course, he’s only seen me two times now (part of the post-surgery clinic).
Breakage and Leakage: not fun anytime, especially in the middle of the night or when out and about trying to do normal activities. The Good News: I seem to have re-gained the hang of when to change my appliance. No accidents for more than a week now (knock wood).
Enough venting. According to the doctor I’m free of all lifting and exercise restrictions. I plan to start working out – slowly – this week and get back to tap dancing again next week.
And, then there’s my trip to Florida in about two weeks…
Well, it’s been a little over a month since I became what is known as an “Ostomate.” This is a person who’s insides have been altered to create a new opening for his or her intestine to empty through (aka a stoma).
Hopefully, to assist the few other new ostomates who may stumble across this blog here are a few things I’ve learned so far. Some the doctors, nurses and dietitians warned me about. Most, they did not:
No matter how careful you are, no matter how often you empty your appliance, you will have accidents. It might be a leak or a blowout – but it will happen.
Some of these will occur at an inopportune time like work (once), before a social function (once), or in bed (three times so far).
Invest in a mattress cover. Don’t skimp on this. I got one that’s breathable and noiseless. Sheets can be cleaned. Mattresses, not so much.
Have emergency kits on hand in your car and at work (a pre-cut appliance, powder, solvent, whatever you need to make a change). I also have spare underwear hidden in my office.
Follow the doctors’ and nurses’ orders. I know, this should be a no-brainer, but it’s worth repeating.
Be patient. It takes a while to adjust to life with your new friend.
Try a pouch support of some kind. I have a band that I slip into with a built in pouch. Check on line there are several styles out there.
Guys, suspenders are better than belts.
Chew, chew, chew. The stomach is an amazing organ and very efficient at breaking down what you eat. But it can’t do it alone. Avoid “chunks” and chew carefully. Trust me on this.
Share your story with friends and family. My first instinct was to not let people know what I was going through. But, there are more of us than anyone realizes. It doesn’t help to keep it a secret.
Red dye is forever. Before you panic because you think your bag is filling with blood, take a deep breath and think, “what did I eat?” One popsicle or glass of Hawaiian Punch can put a very quick scare into you.
Having stated the above (#9), remember it’s okay to be discreet. I don’t tell everyone I meet that there something different about me.
You are going to learn a lot about how your food is digested. This can be interesting and disturbing at the same time. For example: fish smells like fish going in and coming out.
Try to focus on the positive of your situation. Is your pain from Crohn’s, Ulcerative Colitis, or whatever issue gone? Hemorrhoids cleared up? And I bet you don’t miss having to strain to relieve yourself anymore.
Don’t focus on what’s changed in your life, focus on what’s the same. Get back to your normal routine as quickly as you can and your energy allows. Remember, your life didn’t change – only your plumbing did!
Don’t get me wrong, I have my moments of despair and depression, too. I have times when I hate that this thing was done to me and that now I’m not “normal.” But, I then focus on why it was done – literally to save my life – and that perhaps I was spared by God for a greater purpose. I just need to figure out what that is.
You know, like everyone should.
P.S. – you’ll also get really good at estimating how many milliliters of liquid there are in any container. You know why…
“Mr. Wahr, Mr. Wahr? Do you know what’s happening?” the young med student who just woke me at 4:00 A.M. asked me.
“I think so,” I replied. I had come in to the University of Michigan Hospital less than 24 hours earlier with abdominal pains that didn’t feel like a normal Crohn’s attack. Something was off so after much hemming and hawing I finally decided that given my heart history I really couldn’t take the chance that something was really wrong. Especially since the pains had started the day before and weren’t lessening as was the usual pattern with my Crohn’s, “but why don’t you tell me.”
She looked at me with sympathetic eyes and said, “you’re going in for emergency surgery. A surgeon will be in shortly to explain.” Surgery? I had certainly anticipated this. In the Emergency Department they had determined that I had what they called a “micro fissure” of the fistula in my ileum. But, at least at that time, they didn’t think I needed surgery within 12 hours. So I had been moved to a room for observation.
Almost as soon as she finished her sentence a young man appeared at my bedside – why are all doctors so young now? – in a polite, but firm tone he said, “Mr. Wahr, I’m sorry but you need to sign some forms to authorize surgery. Here, here, and here.”
“Surgery?” I asked.
“Yes, we can’t get your fever under control. Our only choice is to go in and remove the cause of the infection. Otherwise your prognosis…we’ll it isn’t good,” he said in a quiet, somber tone. I understood what he was telling me and started signing the forms.
“I need to tell you of all the possibilities of having this surgery,” and he listed off the usual complications and issues and then added, “and you may end up with a stoma.” By this time another surgeon had joined the growing group at my bedside. She seemed to be in charge.
“May end up with a stoma?” I asked, “how likely is that?” The new surgeon answered, ” well, we never go in planning to create a stoma, but until we go in I can’t say for sure. They’s be coming to move you to surgery in a few minutes.”
The doctors disappeared and my nurse appeared to start prepping me for moving to pre-op. As she moved my IV bags the transport team came in. “We’re going to take you down to surgery now,” the nurse said. I grabbed my phone and sent a quick text to my brother. If something happened during surgery, I wanted someone in my family to know what happened while they slept.
In pre-op I was greeted by even more medical staff. One of the anesthesiologists started to ask me a slew of questions, a woman who identified herself as a nurse held my hand and spoke to me in a comforting manner, then I heard doors open, multiple footsteps and could feel the group around me stiffen a little.
“Mr. Wahr, I’m the faculty surgeon overseeing your operation. Here’s what’s happening. The fissure you have is worse than we thought. The contents of your bowels are emptying into your abdominal cavity, causing infection. If we don’t go in and stop this, we won’t be able to bring the infection under control. The outcome will not be positive. Do you understand?” I nodded that I did. “We’ll remove the damaged areas of your intestine and when you wake up you will have a stoma. Do you know what this is?”
“Yes,” I replied, “but it sounds better than the alternative.”
“It is,” the surgeon replied. “You’ll be going into surgery now.” And with that they began to wheel me to the operating room. I noticed the time on a clock. It was not even 5:00 A.M. They were not wasting any time which told me all I needed to know about the seriousness of my situation.
A quick trip down the hall, during which I mostly observed the ceiling, and we were in the operating room. A white, sterile looking space filled with equipment and a woman sitting in the corner covered with a blanket around her shoulders. Part of the anesthesiology team perhaps? I’ll never know. A quick transfer from my bed to the “table” and the voice of the anesthesiologists who spoke to me earlier. “Are we ready? Okay, here we go.” A mask was put on my face and just as I was wondering if this was it and would I ever wake up, everything went black.
Next thing I knew, I heard a disembodied voice asking me questions, “Mr. Wahr, can you tell me where you are?”
“U of M Hospital, I’m having surgery.”
“Very good, everything went well. You’re going to a room now.”
I continued to drift in and out of consciousness for an unknown amount of time. It was about 10:00 A.M. when I finally seemed to actually wake up. I said a silent prayer thanking God for letting me wake up and yet another doctor came into my room. This, I would later learn, was the “attending” doctor for the intensive care unit I was in.
“Mr. Wahr? How are you doing?” he asked.
“I guess fine. Considering.”
“Yes, I understand. The good news is that the surgery went well. You do have a stoma, but the infection and fever are gone and you should make a full recovery. You were lucky,” he paused to consider his words carefully, “this was the kind of thing that people die from.”
“So I hear.”
He went on to tell me a little more about the surgery and that the surgeon would be in later to check on me (as he did each day I was at the hospital). He then left me with the nurse so I could settle in.
Thus begins my newest adventure with Crohn’s. In a way I always suspected that this day was in my future – yet it was still a surprise when it happened. Many Crohn’s patients end up in surgery and with stomas. I’ve managed to avoid it for more than 30 years so in that sense I’ve been fortunate. And there is the possibility that in 6 months or so, presuming that the Crohn’s is under control, that I could be “hooked back up” so that my colon can be useful again. So, all in all, I’m handling the situation pretty well.
My current concerns while I recuperate and adjust to life with an appliance attached to my side (which does get changed every three to four days): 1) dehydration – most of the water for the body is absorbed by the colon. It will take time for my small intestine to realize it needs to pick up the slack; 2) weight loss – even though my appetite is good, food is still passing through my intestine too quickly. As a result, I’ve been slowly losing weight (almost a pound a day). Something a lot of folks dream of, but be careful what you wish for. When I was first diagnosed with Crohn’s I dropped down to about 140 pounds from my then previous weight of 180 pounds before being stabilized. I sure don’t want to be that thin again. Plus, all the weight seems to be disappearing from my chest and shoulders and thighs. Not my belly where I really don’t need it. Muscle loss is certain at this point. There goes the last 30 years of training down the drain; 3) infection, which I’ve avoided so far, always a risk after surgery but especially for someone with a weakened immune system; 4) controlling the Crohn’s. My past medical regimen didn’t prevent the fissure which is an indication that the treatments weren’t working. The interesting thing now is that my Crohn’s has historically been localized to the ileum. Now that my ileum, about a meter’s worth of small intestine, is gone the question is will my Crohn’s flare up somewhere else?
That’s it in a nutshell. I’m managing to deal with the appliance pretty well so far with only a couple mishaps (one in the doctor’s office) and I’m looking forward to returning to work soon.
Of course, I’ll keep blogging about my experience in the hopes of helping someone else with the same or similar situation. There’s always hope folks and we are all in this together.
On a side note, I had an interesting experience that was repeated with three nurses as they prepared to give me an injection in the back of my arm. It went something like this:
“Left or right arm?” the nurse asks.
“Doesn’t matter. Left.” I reply.
“Okay,” takes my arm to prepare the injection site. Stops and says, “oh, I’m not sure what this is. Is there a tumor in your arm? Or is that your tricep?”
“I hope it’s my tricep.”
“Yes, I guess it is. Not used to seeing a tricep like this. Very impressive.”
Now, I can’t be sure if the comment – from three different nurses – means I have an oddly shaped tricep or if they just don’t expect a relatively well developed tricep on a…ahem…mature man (though I think it’s looking pretty puny right now). I’ll go with the latter as it makes me feel better about myself. You have to look for the positive in every situation after all.
A friend of mine is a runner. Not a casual jogger but a real honest to goodness “why walk when you can run” distance runner. If there’s a race, he’s done it. Five Kilometers, 10K, 15K, half-marathon, full-marathon – you name it. But, though he’s put more miles on his shoes than most of us put on our cars, he told me that occasionally he gets negative comments while running. Here he is, working each day to better himself, and some loudmouth feels that it’s his right to pull up beside him and, for want of a better term, taunt him. Things like “run, fat boy” or worse and though he doesn’t have the typical marathoners build, he isn’t fat.
But, instead of letting himself get down over these comments though he keeps running, improving his times, his health, and his outlook on life. This is why he inspires me and kept me going through some of my own struggles (especially the running kind).
His experience though got me to thinking about all the comments I’ve heard or have been made to me about my working out and/or about my physique. These fall into two categories, positive and negative. Here are those I can recall:
I can’t lift that much weight (former workout partner after I completed my set)!
Your arms are bigger than his (comparing me to someone I thought was bigger).
How did you move that?
How do I get calves like yours?
You underestimate the size of your triceps.
Wow, you’re hard (mind out of the gutter – this was after she touched my forearm)!
Looks sort of like the Mississippi and it’s tributaries (comment from a technician about to draw blood from my arm).
You’ve been working out. Your arms just blew up like…(makes a hand motion to indicate the size of a basketball).
He’s definitely getting bigger (a guy talking to my “trainer” about the workout I was using).
You motivate me to keep working out.
You don’t have muscle tone.
Are you doing this to yourself (when my Crohn’s was at it’s worst and I weighed about 135 pounds)?
Now, notice that the positive comments I recall from over the years far outnumber the negative.
But guess which ones I focus on more? Right, the negative.
I think, unfortunately, it is in our nature to focus on the negative things that people say about us because deep down we want everyone to like us. So any negative thing is magnified. Sometimes to the point of wearing us down and causing us to stop looking at all the good things we’ve done and, frankly, just give up.
How much further in our fitness goals – or any goals for that matter – would we all be if we just focused on our progress, looked back at how far we’ve come, and kept going?
Try focusing on the positive things someone says about you for a day and see how you feel. Then try two days, then three, etc.
The world is full of jerks waiting to tear us down. Be determined to be someone who builds themselves and others up.
Wow! I knew I hadn’t been blogging for a while but I didn’t realize it’s been 3 months. I’ve been busy I guess but I haven’t forgotten my fitness goals and efforts. So, here’s the update for those interested:
Crohn’s – doing well. The Humira treatment seems to continue to work. I wouldn’t call what I’m experiencing full remission, but it’s close. I’ve had a few “queasy” days this summer but nothing major to keep me off work or anything. I’m due for another round of testing/scanning/probing this fall and I expect that I’ll here that my condition remains essentially unchanged from last year. Which would be the best news I could expect (the damage can’t be undone, but if further damage is prevented that’s all I need to keep avoiding surgery).
Fitness: I did pretty well again, for me, with the Rose Run 5K that I’ve been participating in. I beat my time from last year thanks in large part to the urging and support of my niece who ran with me. So this is the third straight year of doing better than the year before! My new goal is to get below a 30 minute 5K. I came in 4th in my age group with 5 behind me by the way. My official time was 41:55 and I’m several minutes faster than when I started 5 years ago. Not a huge change, but a positive one. Especially given how little I actually train for it.
I’ve been keeping up with my weight workouts with my brother-in-law. The weight is going up, my body weight is going down (usually), my waist is shrinking and my biceps are growing. Things are on track in this area.
I participated in a “22 Push Ups for 22 Days” to raise awareness of Veteran Suicide. On average, 22 vets in the USA commit suicide each day. This was a pure awareness campaign but I thought an important one. Plus, doing the push ups each day really seemed to up my feeling of well-being each day. I’m continuing to do them even though the challenge is over. I’m planning to work my way to 100 per day (in one set) by the end of the year.
Mountain Climbing: as a benefit of my increased fitness I took on the challenge of climbing the 2nd highest mountain in the contiguous USA (Mt. Elbert) when visiting Colorado this summer. Unfortunately, I only made it to 13,000 feet and was about 1,400 vertical feet short of the summit. It was a fun day nonetheless with a couple cousins who live in Colorado (they made the summit). The thin air was too much for me – or rather not enough for me. Next time, I acclimate at a higher elevation for several days. Next goal though is to fail to summit the highest point in the contiguous USA – Mt. Whitney in California.
Nutrition: as mentioned earlier, my weight has been decreasing. But, in my continuing quest to build muscle while losing fat I’ve been experimenting with my diet. My most recent experiment was to reduce my carbs significantly and increase my protein. There have been some conflicting studies on the effectiveness of this. But, I’ve known a couple people who really dropped the weight while doing this and my limited experience so far is that it does work. I’m still playing with how to add some carbs back in occasionally, since they have a place in the overall healthy diet and maintaining daily “energy,” so more on this later.
Mental Health: overall, I’m still a happy and positive person. Sure, I have my moments like everyone else, but I don’t have much to complain about. My “new” job is going well with supportive co-workers and supervisors, my friends are few but close, my family closer and my faith is strong. The only thing that threatens my well-being right now is the back and forth bickering on Facebook concerning the presidential campaign. Just a few more months…
So, overall things are good. I feel healthy, I look healthier, and I’m more active than I’ve been in a long time. Old age is still creeping up on me (I notice more daily aches and pains) but I’m putting it off as long as I can and hope you will do the same.
The good news is that I’ve been keeping busy since my last blog. I’ve actually completed production on two plays that I acted in (one in February and one in April), I’m feeling pretty comfortable with my “new” position at work (I’ve been in it since September so I can’t really call it new anymore I suppose), and over all my health has been good. Not great, but good.
My Crohn’s seems to be more active over the last couple months. I haven’t had much in the way of full-blown flare ups but I’ve had some significant pain on and off, digestive issues, and an overall malaise/weakness/weariness which are all signs of Crohn’s activity. Things have been mild enough that I feel the Humira is still working but something has been going on. I’m also suspicious that some of what I’m attributing to Crohn’s is actually gallbladder related as the pain is just below my right rib cage. However, the “gurgling” and assorted noises sure don’t sound like my gallbladder! On top of this I’ve been plagued with a on again/off again cough. Sometimes it’s a full blown cold, sometimes it’s nasal congestion, all the times is annoying.
In terms of my fitness efforts, well…due to the previously mentioned feeling of malaise I haven’t been working out like I should. My weightlifting has been spotty at best, I haven’t been getting in my walks regularly, and as far as running goes…I don’t. I have had an attempt or two and now that spring seems to actually be here I really need to get back on track. I’ve been averaging less than 10,000 steps per day for some time and it’s time to get that count up at the very least.
On the plus side I’m at my lowest body weight this century! I have been tracking my food and macros so I think that is really helping. I’ve noticed that I’m not getting enough protein and too many fats so I need to reverse that. Especially since the protein will help me to retain/build muscle which becomes more critical as I approach yet another birthday next month.
I have goals for the summer which includes some mountain climbing on a trip to Colorado. If weather and conditions permit I hope to finally summit Long’s Peak – one of Colorado’s 14,000 footers. I had gotten as far as the Keyhole once in the past but due to a storm was not able to push on to the peak. Fortunately, I have a cousin who is an avid climber and he’s offered to take me up when I’m out there. But, in order to make it I’ve got to be in good cardiovascular shape – especially since I’m not used to the “thin” air – and my legs have to be strong enough to tackle the 15 mile round trip (half of it uphill).
The good news is that I won’t be lugging as much fat on the mountain. Wish me luck.